Macular Disease: Practical Strategies for Living With Vision Loss
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Description

Peggy R. Wolfe, who has lived since 1999 with macular degeneration, offers reassurance, hope, and invaluable insight on living well with macular disease and declining vision. With strong endorsements from the medical community, this handy reference is filled with personal stories illustrating the author’s own challenges and adaptive strategies. It also includes hundreds of constructive, easy-to-follow techniques on everything from performing everyday tasks to selecting assistive tools and technology to maintaining an optimistic, fighting spirit.

Printed on glare-resistant paper in large-print format, Macular Disease: Practical Strategies for Living with Vision Loss is an authoritative, empathetic, personable guide. It will help readers to meet each day’s challenges and sustaining a positive, realistic, “can do” attitude in the face of vision loss as new ways of living well are developed and mastered. Do you

Topics Include—

• Finding hard-to-spot items
• Learning new ways to perform everyday tasks
• Strengthening other senses
• Deciding when—and when not—to seek or accept help
• Sharing feelings with friends, family members, and others
• Selecting helpful products
• Preparing for the future

Endorsements

Robert C. Ramsay, MD
“Ophthalmologists struggle with trying to assist patients and families as they adapt to untreatable and permanent visual impairment, and the ophthalmic community is always looking for new and better ways to assist our patients. There is no question that this book represents a large step forward in providing appropriate information. The text is well organized, sharp and the photographs superb, all of which are necessary for the visual impaired population. This is a superb book that should help thousands of patients.”

Dorothy J. Horns, MD
“The book is informative, well-written, and practical. A lot of research, thought, and effort has gone into this book, and the result is excellent.”

Dodie Frisbie, Outreach Librarian, Niles Public Library District (IL)

“All of us who deal with low vision patrons were absolutely delighted to see your book come along. I think your book is a fantastic resource. The local support group is planning to use your book for guidance and resource information. There don’t seem to be many books available on this specific topic and yours is most welcome! It’s an increasing need that libraries are struggling to meet.”

Reader Marquita O’Connor, St. Paul, Minnesota

A brilliant book not to be missed by anyone with low vision and their caregivers

From the moment I opened this book, I knew I was in good hands. To my delight, I could read it! The size and blackness of the print, the paper quality, the careful spacing of words, lines, and margins—all contribute to its readability for me, a person with low vision. The chapter on improving reading ability intrigued me first, in that it is personally my biggest challenge at present. It was so helpful that I decided to read the book from cover to cover.

Helpful hints for daily living about everything from cooking to personal grooming to aid in writing a check abound on each page. While the chapter entitled “Making Driving Decisions” would have been even more helpful while I was still able to drive, the suggestions for what to do after “giving up the keys” stimulated me. In each chapter the paragraph called “My Story” gives a personal sense. Particularly touching is the story about situations surrounding the death of the author’s husband, entitled “One Day Too Late.”

Even though my vision deterioration results from a rare condition affecting the macula, pathological myopia, rather than the more common macular degeneration, the strategies for dealing with vision challenges definitely apply to me. Now the book has become a reference manual for me, aided by the excellent index and appendix. Finally, the book encourages me to become a creative problem solver as I meet new challenges.

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From the Author

“This book was written in real time as I continued to adjust to the progressive decline of my vision from macular degeneration. When I was diagnosed at the age of 69 I wasn’t too surprised, as my mother and my uncle lived with macular disease for many years. They provided me gutsy examples of how to live with vision loss. This longtime exposure to their stalwart optimism left me with an accepting spirit—one not filled with fear, but with the will to do battle. I've fought back by developing many strategies to make my life easier now and to prepare for the day when I may need to rely solely on my peripheral vision.

When my retinologist wrongly guessed I might be able to read for only one to two years, rather then being discouraged I was energized to increase my pace of preparation and to share what I’ve learned with others who are in the same situation.

As a lay person, I do not attempt to include coverage of the medical aspects of macular disease. Rather, the book is a personal guide to dealing with the very real situations and challenges that you may encounter. My goal is to offer you real hope, confidence, and optimism about your life with vision loss.

This large print book was specifically designed for the reader with limited vision. Many tests were conducted with low vision readers to select the type size, font, and layout. To see the actual results, click on “Sample pages.

I hope you will find the book both useful and easy to read.”
— Peggy R. Wolfe

 

Sample Pages

Page 63— Measuring Cups with Dots CLICK TO SEE PDF

Page 99 Ch7 Intro- Finding Hard to Spot Things.
CLICK TO SEE PDF

CONTENTS

PART 1. SUSTAINING SPIRIT, MIND, AND BODY
Chapter 1. Nourishing the Spirit and the Mind
Chapter 2. Caring for Your Eyes and Your Vision
Chapter 3. Improving Reading Ability
Chapter 4. Nurturing Your Body

 
PART 2. USING PRACTICAL HINTS TO MAKE YOUR LIFE EASIER

Chapter 5. Cooking and Eating Using Senses of Touch and Hearing
Chapter 6. Organizing Your Living Space
Chapter 7. Finding Hard-to-Spot Things

PART 3. ARRANGING YOUR AFFAIRS AND Using Assistive TECHNOLOGY
Chapter 8. Dealing with Financial, Personal, and Legal Affairs
Chapter 9. Embracing Technology

Part 4. Maximizing Your INDEPENDENCE
Chapter 10. Making Driving Decisions Getting Help from People and Organizations
Chapter 11. Getting Help from People and
Organizations

Appendix A. Resource Organizations
Appendix B. Suppliers of Low Vision Products

Index

 

Reviews

Janet M. Schneider, James A. Haley Veterans’ Hosp., Tampa, FL Library Journal

Verdict: Printed in a large, dark font, this book provides basic, valuable, just-in-time information for those individuals facing vision loss, especially older adults. Highly recommended..

Background: Wolfe was 69 years old when she was diagnosed with macular degeneration, a disease that destroys one’s sharp central vision and is a leading cause of blindness in older adults. In the eight years since that diagnosis, she has gathered a wide variety of tips that should help other people adapt to vision loss. Forgoing any medical information, Wolfe focuses on the strategies she has learned as her vision declines. She stresses a positive attitude and healthy lifestyle as key to adapting successfully to vision loss, as well as basic guidelines to monitor remaining sight. Tips include information about reading aids such as additional lighting, stands, and magnifiers; ensuring one’s hearing is checked; "talking" tools such as watches, thermometers, and blood pressure cuffs; and ways of marking clothing and kitchen utensils for easier identification. Assistive audio and video and computer technology are covered. Maximizing independence in financial and legal matters receives brief attention.

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